I am a survivor of pediatric ALL, diagnosed in 1980, relapse in 1983, when treatment included prophylactic cranial RT and IT methotrexate. In 2006, I had my first RIM (radiation induced meningioma) excised from the tempo-parietal region of my brain. Since then, I have had 4 more radiation induced tumors, as well as ongoing seizures, memory decline, cavernomas, osteoporosis, and fatigue. My medical team is now trying to figure out why, despite decades of running, low BMI, no history of smoking or drinking, and taking an ACE inhibitor and a calcium channel blocker, my blood pressure remains so high. I’m very lucky I have access to cutting-edge medical care at UCSF and Stanford, but one issue isn’t mentioned in this article: cost and health insurance. I can no longer afford my private medical policy, but Medi–Cal won’t cover my care out-of-county. This is a bureaucratic nightmare, an enormous stress. I’ve run 4 marathons for the LLS Team in Training program and would like more support around insurance issues. Thank you.
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